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Improving your care by sharing information with others looking after you

We are one of three practices in Leeds piloting the new Leeds Care Record. From October 16th 2013 we will share key information from your record with other people providing direct care for you, for example Leeds accident & emergency department, outpatient clinics, district nurses and social care. We already share information of this sort, but mainly on paper or electronicially at the time of making a referral. By the time you are next seen in clinic this information could be out of date, for example if you've changed your medication. The Leeds Care Record will mean that those people caring for you will have up to date information. Protecting your confidential information is important to us and we are working with the others involved in this project to ensure that. Please read on for more information:

Important Changes To How We Handle Your Personal Data

We will soon be required to supply your personal and confidential medical Information to the Health and Social Care Information Centre (HSCIC). This information will be taken from the practice in a form that can identify you. The Practice has no choice but to allow the HSCIC to extract this information. However, individual patients can instruct their Practice to stop the transfer of their data. For more information on the reasons for this data extract and how to opt out of sending your confidential information: see below.

There are changes occurring in how we protect the confidential and personal information that we record in your medical records. The changes make it a legal obligation for us to share your information (see leaflet for details). The proposed benefits of sharing identifiable data are to help to plan and monitor effective patient services, especially where patients receive care from several different organisations.

We feel it is vital that you, as our patient, are made aware of these changes. This leaflet has been produced to help you understand what currently happens to information you share with your health professional and how that information may be used outside of your direct care. 

The official NHS England poster, NHS England information leaflet and NHS England FAQ are available here, or from the NHS England website

Some of us didn't feel that these gave patients complete information about these changes and have collaborated to produce alternative information:
EMIS National User Group website
Recommended Patient information leaflet 

If you decide that you would like to prevent your information from being used in this way, you can complete this opt-out form and return it to the surgery. If you change your mind later, you can use the same form to opt back in.

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